Grace Fantaroni, Aileen Sandoval, Gary & Dahlia Shekedy

Study Start Date:  4/14/2020
End Date:  9/15/2020

Contact Phone:  619-379-8125
https://www.pointloma.edu/faculty/grace-fantaroni-edd
gfantaro@pointloma.edu

This research survey is conducted through Point Loma Nazarene University. Please share with both autistic adults over 18 years old and parents of children with autism, autistic parents with autistic children, verbal and nonverbal. The survey will take 10-20 minutes.

The research is to understand the trajectories in the lives of individuals who have been diagnosed with Autism Spectrum Disorder (formerly known as Pervasive Developmental Disorder).

The purpose of this study is to determine the current status of those individuals in order to better inform current treatment practices and create recommendations for the treatments and therapies that will be used for the next generation of kids with autism.

To participate click link http://autismresearchstudy.com

Michael Brown
619-925-6195
mbrown1@ego.thechicagoschool.edu
Start Date:  Upon Approval
End Date:  12/31/2020

This study intends to examine the real-life experiences of caregivers that provide care for a child with Autism Spectrum Disorder (ASD). The information and data collected about the experiences will be used to establish the potential presences of vicarious trauma, with the intent of identifying a label that will assist mental health professionals in treating, diagnosing, and working with care providers of children with autism. Participants that qualify to participate in the study are: 1. are at least 18 years-old, 2. must speak English fluently, 3. must be a parent of a child diagnosed with ASD and have provided partial or full-time care for the child for a minimum of 12 months, and 4. a year or more has passed since receiving the ASD diagnosis.

Ralph-Axel Müller, Ph.D. & Ruth Carper, Ph.D.
(619) 594-0176
ASDAging@mail.sdsu.edu

We’re looking for adults age 40 to 65 years who have Autism Spectrum Disorder or Asperger’s Syndrome to participate in a new research study in San Diego, California.

This project will fill a large gap in our current knowledge of ASD with virtually nothing known about brain and behavioral changes after age 40. Participants will take part in cognitive testing and an MRI scan. Volunteers must live in the San Diego area, be able to follow verbal instructions, and be able to hold still for an MRI scan. Participants will be paid for participating.

This project is conducted by Dr. Ralph-Axel Müller of San Diego State University through a grant from the National Institutes of Health.

Hannah Kaplan
SPARK Research Coordinator
UCSD Autism Center of Excellence
858-534-6906
www.sparkforautism.org/ucsd.sarrc
h1kaplan@ucsd.edu

Our center is currently a part of a large autism research study called SPARK that includes both biological parents and child diagnosed with ASD. SPARK seeks to speed up autism research and improve our understanding of autism. This includes learning what causes autism and how best to treat it. Our goal is to build a community of 50,000 individuals with autism and their biological family members. 

Our Goal:  SPARK seeks to speed up research and improve our understanding of autism.  This includes learning what causes autism and how best to treat it. UCSD ACE and over 20 of the nation’s leading medical schools and autism research centers are part of this effort.

What We Do:  SPARK researchers study genes and information collected from thousands of people with autism and, if possible, their parents.  We hope you will join us!

How To Join

• Sign-up online at www.sparkforautism.org/ucsd.sarrc. It only takes about 20 minutes.
• Complete a few questionnaires online.
• Provide a saliva sample. We will send a small saliva collection kit to your home. When you are done, simply mail it back to us for free. 
• *If you are promoted with: “Were you referred by a university, hospital, or registry?” Please select UCSD SARRC!*
  

There is no cost to take part in SPARK. The research is sponsored by the Simons Foundation Autism Research Initiative (SFARI). If you have any questions about the study, let me know and I would be more than happy to discuss them either by email or phone. You can respond to this email or call Hannah Kaplan directly at (858)-534-6906.

Dr. Yan hua- Huang, Sabrina Setareh, Laura Silver, Ashley Wynne, Grace Yim, Lisa Yee
310-243-2136
sabrinasetareh@yahoo.com

The purpose of this study is to explore the quality of life of young adults with high functioning ASD. While there are studies on quality of life on adults with ASD, these studies have been taken place in foreign countries such as Germany and Taiwan. The findings will be helpful due to the need for occupational therapists to improve interventions to improve social skills of young adults with ASD. This study will be confidential and no names or personal information will be asked. We are hoping to have a total of 70 participants who meet the following criteria:

1. Adults between ages 18-35 
2. Diagnosed with ASD
3. Able to legally consent for themselves