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Research Studies

Research is the key to improving our knowledge about possible causes of autism and helping to identify effective treatments. The following researchers are seeking participants to assist in their studies.

If you are seeking funding sources to conduct a study, click here for more information about the Autism Society San Diego Bernard Rimland Memorial Research Grant.

If you are seeking participants for studies relating to ASD (must be IRB approved) and would like your information to be posted, please click here to submit.

Below is a list of researchers seeking participants for their studies.

How does alexithymia affect children on the autism spectrum?

 
Study Start Date:  11/23/2020
Study End Date:  1/8/2021
Kamille Roese
951-255-6756
kroes003@ucr.edu

My name is Kamille Roese and I am an undergraduate psychology student at UCR conducting an undergraduate Honors Capstone project. I am seeking 7- to 12-year-old children on the autism spectrum as participants in my study. I will be supervised in this study by Dr. Jan Blacher, Distinguished Professor at UC Riverside and Director of the SEARCH Autism Center.

Simply put, I am studying alexithymia, the inability to describe one’s emotions. I will be asking the student participants to take an online survey, during which they listen to three pieces of music and to answer a few items about what they felt while listening to the music. The students can stop at any time with no consequences; their data will be de-identified, coded and kept completely confidential.

To participate, kroes003@ucr.eduplease email Kamielle at kroes003@ucr.edu.

Survey:  Barriers to Services for Autistic Children

 
Elizabeth Sanchez Arvizu, M.A.
Doctoral Psychology Student
California School of Professional Psychology
Alliant International University
(619) 356-1438

esanchez_arvizu@alliant.edu

Participate for a chance to win one of 3 prizes
$50 Fandango card, $50 Amazon card or $50 Visa card

We are attempting to understand the obstacles parents face when seeking services for their children diagnosed with autism. Help us to understand what parents experience when seeking autism resources for their children.

We need parents of Mexican or Caucasian descent, who have a child diagnosed with autism between the ages of 3-17 to complete a survey. The result of the survey can help us identify any barriers to receiving services and create programs to improve access to services.  The study has been approved by the Alliant International University Institutional Review Board and it is anonymous.

Study Links
  • English https://alliant.qualtrics.com/jfe/form/SV_0rHNKaZGhNhCXAx
  • Spanish https://alliant.qualtrics.com/jfe/form/SV_etD6QQMW1CvGPVr

Flyers
  • Download Flyer in English
  • Download Flyer in Spanish

Gaze-driven Video Games for Training Attention During Development

 
Start Date:  7/15/2019
End Date:  7/15/2021

858-246-1932
https://medschool.ucsd.edu/som/neurosciences/research/labs/autism-and-development/participate/Pages/AIM.aspx
radlab@ucsd.edu

The Research on Autism and Development Laboratory's aim for this study is to test the efficacy of an at-home behavioral intervention on improving various components of the broad construct of attention. We are looking for children between the ages of 3 and 10 that have been diagnosed with a learning or developmental disorder who are willing to play video games at home for 12 weeks (no major medical problems including seizures).

Current Status of Individuals with ASD

 
Grace Fantaroni, Aileen Sandoval, Gary & Dahlia Shekedy

Study Start Date:  4/14/2020
End Date:  9/15/2020

Contact Phone:  619-379-8125
https://www.pointloma.edu/faculty/grace-fantaroni-edd
gfantaro@pointloma.edu

This research survey is conducted through Point Loma Nazarene University. Please share with both autistic adults over 18 years old and parents of children with autism, autistic parents with autistic children, verbal and nonverbal. The survey will take 10-20 minutes.

The research is to understand the trajectories in the lives of individuals who have been diagnosed with Autism Spectrum Disorder (formerly known as Pervasive Developmental Disorder).

The purpose of this study is to determine the current status of those individuals in order to better inform current treatment practices and create recommendations for the treatments and therapies that will be used for the next generation of kids with autism.

To participate click link http://autismresearchstudy.com

Vicarious trauma, an indicator of quality of life for adult caregivers of children with Autism Spectrum Disorder.

 
Michael Brown
619-925-6195
mbrown1@ego.thechicagoschool.edu
Start Date:  Upon Approval
End Date:  12/31/2020

This study intends to examine the real-life experiences of caregivers that provide care for a child with Autism Spectrum Disorder (ASD). The information and data collected about the experiences will be used to establish the potential presences of vicarious trauma, with the intent of identifying a label that will assist mental health professionals in treating, diagnosing, and working with care providers of children with autism. Participants that qualify to participate in the study are: 1. are at least 18 years-old, 2. must speak English fluently, 3. must be a parent of a child diagnosed with ASD and have provided partial or full-time care for the child for a minimum of 12 months, and 4. a year or more has passed since receiving the ASD diagnosis.
Informed Consent
Approval Letter

A Correlational Study of Parenting Children with ASD in the Black Community

 
Conducted by Sandreea Durham
Start Date:  May 2019
End Date:  Jan 2020
904-327-3234
sdurham7@capellauniversity.edu

This study will help determine the existence of relationships between spiratuality based coping skills, parenting stress, and perception of support system.  Data will be collected using three surveys (spiritual well being scale, autism parenting stress index, personal resource questionnaire) through an online platform.  Participant criteria includes African American parents of children on the autism spectrum.

Approved IRB Letter

Factors Contributing to Parent Stress in Those Raising a Child with Autism.

 
Amber Hasbun
818-212-3233
ahasbun@alliant.edu
Picture
Download Flyer
Abstract
In two decades, the prevalence rates of Autism Spectrum Disorder (ASD), have dramatically increased. In March of 2016, the CDC estimates as many as 1 in 68 children are diagnosed with autism each year, which is up from 1 in 88 in 2008 and estimates of 1 in 150 in 2000. While stress related to parenting is universal, the stress reported by parents of children with autism exceeds that of parents raising a neurotypical child and parents raising children with other developmental disabilities. Identifying contributing factors is necessary for improving both systemic functioning and individual symptom management, as well as improving targeted intervention and treatment to ameliorate experiences. The purpose of this study is to determine the factors that are contributing to parent experiences of stress for those raising a child with autism.  
Criteria
  • Parents are over the age of 18 and have a child with a diagnosis of Autism Spectrum Disorder (ASD)
  • The child received a diagnosis of autism spectrum disorder by the age of 5
  • The child received a diagnosis of Autism Spectrum Disorder from one of the following professionals: Medical Doctor, Psychologist, Neuropsychologist, or Psychiatrist
  • Child is currently between the ages of 2 and 5.
  • Participants agree with the question that they “are comfortable answering questions about you and your child in English”
  • That participants currently reside in the United States
Approval Letter
Informed Consent Form

Parent Survey for Children with Autism and Other Developmental Disabilities

 
Interactive Media Institute
http://interactivemediainstitute.com/wordpress/
iantmiller94@gmail.com

This is an informal, 3 question survey for parents of children with developmental disabilities. It does not collect any identifying information about the respondents or their children. Thus, an IRB is not required. We would like to obtain a list of difficult daily contexts for these children to later inform a research study (which is currently under review by an IRB). The link to the online survey is below. We would greatly appreciate this being posted on your Facebook page and/or website. I am happy to provide a short message to accompany the survey link on any posts.
Click Here for Survey

Attention Differences in Persons with ASD and their Family Members

 
Alan Lincoln, Ph.D., MSCP, BCBA-D and Shamayne Brown, M.A.
Neuroscience Center of Alliant International University
858-635-4068
sbrown7@alliant.edu or alincoln@alliant.edu

Participate in Research: Attention Differences in Boys with ASD and their Family Members

Boys with ASD between the ages of 8 and 16 and BOTH of their biological parents are invited to participate in a study examining attention skills and genetics.

Boys who are typically developing and their biological parents are also invited to serve as a control group.

This research taking place at the Neuroscience Center of Alliant International University under the supervision of Alan Lincoln, Ph.D., MSCP, BCBA-D and Shamayne Brown, M.A. You must be able to travel to the lab.

Study Requirements:
  • Both biological parents and son must participate.
  • Each parent will complete questionnaires about him or herself. This should take about 30 minutes.
  • Each parent will complete a brief standard cognitive measure. This should take about 30 minutes.
  • Each parent will complete a complete a customer task. This should take about 30 minutes.
  • One parent will complete questionnaires about your son. This should take about 25 minutes.
  • Your son will complete the brief standard cognitive measure. This should take about 30 minutes.
  • Your son will complete the computer task. This should take about 30 minutes.

Upon the completion of participation in this study, your son will receive a $20.00 cash gift and each parent will each receive a $10 gift card. You may also receive, upon request, results of your performance and/or your child’s performance.

Refer another family to the study and be entered in a drawing for a $200 Visa gift card.

If you are interested in participating, please contact us at 858-635-4068, or by email: sbrown7@alliant.edu or alincoln@alliant.edu

Multimodal imaging of early neural signature in autism spectrum disorder

 
Inna Fishman, PhD; San Diego State University
619-594-2299
​http://scan.sdsu.edu/
toddlermristudy@mail.sdsu.edu
Study Start Date: 9/1/2015
Study End Date: 12/30/2018

We are recruiting families with toddlers (18-24 month old) who had just received a diagnosis of Autism, or Autism Spectrum Disorder, to take part in the NIH-funded brain imaging studies. We will ask you to visit an MRI research center, where we can obtain images of your child's brain, while she or he is naturally asleep. The scans will take place late in the evenings when your child is usually asleep. It has been shown that kids can sleep successfully (and peacefully) in the MRI machine. Thus, while this method is completely non-invasive and safe, it can provide us with critical information about how your child's brain is developing at this critical period when autism symptoms first emerge. You will be compensated for your time and efforts. We will also ask you to return for a similar visit when your child is about 3 year old, and again when they are about 4-5 year old, for which you will also be compensated. 
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  • Home
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  • Autism Info
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  • Membership
  • Donate
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    • United Way Payroll Deduction
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  • Resources
    • Resource Night
    • Community Resource Guide
    • Transition/Adults
    • Autism Guides
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    • Fire Safety
    • Military Support
    • ASA en Español
    • Recursos Locales
  • Programs
    • Meetup Calendar
    • Aquatics Programs >
      • Aquatics Programs
      • Family Pool Parties
      • Swim Lessons
    • Autism's Got Talent
    • Gym Nights
    • Disneyland Tickets
    • Camp I CAN
    • Surf Camp
    • Family Camp
    • AWARE
    • Education Scholarship
    • Sensory Friendly Films
    • Other Local Events
    • Fundraising Events >
      • Walk N Rock for Autism
      • Splash for Cash
      • Lights! Camera! Autism!
      • Beers & Cheers for Autism
  • Support
    • Support Groups
    • Discussion Forums
  • Research
    • Research Studies
    • Request Research Study Posting
    • Research Grants
  • Volunteer
  • Connect
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    • E-News
    • Facebook: English
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    • Youtube
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